We the scientists: how a daring team of parents and doctors forged a new path for science
Description
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Subjects
Subjects
Community-Based Participatory Research
Disabled Children
Family relationships
Genetic disorders in children
Genetic disorders in children -- Patients -- Family relationships
Instructional and educational works
Niemann-Pick Disease, Type C
Niemann-Pick Disease, Type C -- therapy
Niemann-Pick diseases
Niemann-Pick diseases -- Treatment
Parent-Child Relations
Parents
Parents of children with disabilities
Patients
Rare diseases
Rare diseases -- Patients
Rare Diseases -- therapy
therapy
Treatment
Disabled Children
Family relationships
Genetic disorders in children
Genetic disorders in children -- Patients -- Family relationships
Instructional and educational works
Niemann-Pick Disease, Type C
Niemann-Pick Disease, Type C -- therapy
Niemann-Pick diseases
Niemann-Pick diseases -- Treatment
Parent-Child Relations
Parents
Parents of children with disabilities
Patients
Rare diseases
Rare diseases -- Patients
Rare Diseases -- therapy
therapy
Treatment
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ISBN
9780399576133
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